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Listed below are local and online patient support groups for polycythemia vera, essential thrombocythemia and primary myelofibrosis patients. Contact the MPD patient support group coordinator nearest you or scroll to the bottom of this page for online groups.
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mpdfoundation.org/resources.htm
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hi Susan, try to read real stories on this site under essential thrombocythemia.... me too got this rare disease... but with the help of information and this site makes me hoping that we can have an answer or we can ... I plan to start a support group for the upstate area of South Carolina so that we can help each other.
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www.cancercompass.com/message-board/message/all,4093,0....
www.cancercompass.com/message-board/message/all,4093,0.htm
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See JJ Michiels et al, Proposal for revised diagnostic criteria of essential thrombocythemia and polycythemia vera by the Thrombocythemia Vera Study Group. Sem Thromb Hemostas 1997; ... It also once was thought to be a disease of the elderly. The youngest in our mpd-net support group was diagnosed at age 6 years old.
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www.chelationtherapyonline.com/articles/p135.htm
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If you have a high platelet count because you have a blood disorder that affects the makeup of the blood itself, this is known as primary or essential thrombocytosis and bleeding and clotting, though rare, ... For more help and information about essential thrombocythaemia, contact the patient support group MPD-Support.
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www.netdoctor.co.uk/diseases/facts/thrombocytosis.htm
www.netdoctor.co.uk/diseases/facts/thrombocytosis.htm
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Essential thrombocythemia belongs to a group of conditions called myeloproliferative disorders. Myeloproliferative disorders cause platelets, white blood cells and red blood cells to grow abnormally in the bone marrow (the soft tissue inside the hollow part ... Myeloproliferative Disease Support and Daily Email Digest;
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rarediseases.info.nih.gov/GARD/Condition/6594/Essential...
rarediseases.info.nih.gov/GARD/Condition/6594/Essential_thrombocythemia.aspx
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A comprehensive body of resources on Essential thrombocytosis. ... Support Groups (Found 5 resources) Groups providing a wide range of services, ...
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rarediseases.info.nih.gov/GARD/Condition/6388/Essential...
rarediseases.info.nih.gov/GARD/Condition/6388/Essential_thrombocytosis.aspx
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A person with essential thrombocythemia (ET) has an excess amount of platelets in the blood due to a disorder of the bone marrow. A change in the bone marrow stem cell DNA causes the overproduction of platelet-forming cells in the bone marrow. ... Finding Support...
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rarediseases.about.com/cs/thrombocythemia/
rarediseases.about.com/cs/thrombocythemia/
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A fund-raising organization to support Essential Thrombocythemia research and treatment efforts. ... People with Essential Thrombocythemia may be asymptomatic at diagnosis and may not require treatment. Those who are symptomatic may present with symptoms related to small or large vessel thrombosis or minor bleeding.
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www.friendsofetresearch.org/
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Primary Thrombocythemia (Essential Thrombocythemia, Essential Thrombocytosis) information center covers causes, prevention, symptoms, diagnosis, treatment, incidence, risk factors, signs, tests, support groups, complications, and prognosis. ... Alternate Names : Essential Thrombocythemia, Essential Thrombocytosis...
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health.allrefer.com/health/primary-thrombocythemia-info...
health.allrefer.com/health/primary-thrombocythemia-info.html
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